Menopause Mondays: Primary Ovarian Insufficiency/ Premature Menopause

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In the past, I  had the tremendous pleasure of being a guest on the popular show “Broadminded” (Sirius XM Radio 107) a couple of times now and every minute is always a blast (Click here to listen to our hilarious on-air Menopause Mondays party)! The hosts, Christine Eads and Molly Dedham, are a pair of sassy and sharp women who know how to tackle the hottest topics and have a great time, too!

When I first met Christine, she opened up and shared her powerful story about her own struggle to find hormone happiness. Doctor after doctor, and misdiagnosis after misdiagnosis, she listened to her body and didn’t give up on getting the help she deserved. Ultimately, she met a specialist who discovered that she suffered from primary ovarian insufficiency (POI).

This brave Broad was happy to take a seat in the spotlight and let me interview her. Here’s what she had to say:

Q: For all of the women out there who may not know, what exactly is primary ovarian insufficiency (POI)? A: Well, 11 years ago when I was diagnosed with this problem it was called premature ovarian failure. Since then, they’ve changed it to premature ovarian insufficiency (POI) because “failure” sounded so final, and it’s not! POI is the loss of ovarian function at an early age. Some refer to it as early menopause or premature menopause. It can be brought on by autoimmune and genetic disorders, chemotherapy or radiation therapy, but sometimes the cause is unknown.

Q: How are POI symptoms similar to the symptoms of perimenopause and menopause? What’s that like?
A: First, the loss of your period, which sends you into major mood swings… Night sweats, no energy, dry eyes and not being able to sleep.

Q: I always say to trust yourself and listen to your body. How did you know that you needed help?
A: When I was 24, my period just stopped coming altogether. Over the next five years I saw a dozen doctors who told me that I had everything from depression to a sexually transmitted disease. Some told me I was too skinny. Others told me I was too fat. Some doctors said I needed to take birth control pills and others told me to stop taking birth control pills. Of course, all these diagnoses were wrong and that just brought me back to square one. Through all of that, I also had terrible mood swings and I would wake up in pools of sweat. I was told that was a side effect of the antidepressants I was taking. Then, when I was 29, someone recommended I see Dr. Nelson at the National Institutes of Health (NIH), so I did. He diagnosed me with POF, now POI.

Q: What did you feel like when you found out?
A: I was devastated!!  They didn’t want to give me any false hope that there were any follicles and the thought of that was crushing. I wasn’t ready to have kids at that point in my life but I had always dreamed of having a huge family with tons of children. I felt that was being taken away from me and I was really angry at the doctors who didn’t diagnose me properly. I thought if they had, I might not be in this situation.

Q: Well, now you’re a mom! How did that happen?
A: In the protocol at NIH—everyone there is amazing, by the way!—I was given hormone replacement.  I routinely went in for blood work and in August 2001 (10 months later) they asked me to retake a test. The next day, Dr. Nelson called to tell me I was pregnant. I wasn’t trying, but what amazing news! I was obviously taken out of the protocol and none of us could believe how great this was for me. It definitely gives hope to other women with POI that the condition isn’t so final.

Q: You are so hilarious, open and candid. What advice can you give women to help them become more outspoken when it comes to their health?
A: You have to be your own advocate. No one cares about your health more than you. Don’t blow it off and say that it’s normal or it will go away. If you don’t feel right in any way, get to a specialist and ask a million questions until you are satisfied. Don’t be embarrassed to talk to family and friends about what is happening with you. You may not know that POI, or other disorders, may run in your family and you might find strength if someone else is feeling the same way. It is worth taking the time and doing the research to feel better.

Thanks, Christine, for sharing your story. You’re a fantastic inspiration to help us all remember:  Suffering in silence is OUT. Reaching out is IN.

 

 

 

After struggling with her own severe menopause symptoms and doing years of research, Ellen resolved to share what she learned from experts and her own trial and error. Her goal was to replace the confusion, embarrassment, and symptoms millions of women go through–before, during, and after menopause–with the medically sound solutions she discovered. Her passion to become a “sister” and confidant to all women fueled Ellen’s first book, Shmirshky: the pursuit of hormone happiness. As a result of the overwhelming response from her burgeoning audiences and followers’ requests for empowering information they could trust, Ellen’s weekly blog, Menopause MondaysTM, was born.